Isolated.

I've been meaning to sit down and plug in for a while now. Sometimes I have so many words but I'm just not ready to let them flow. Today I felt defeated after talking to Lucas' doctor, so it seemed like a good day to document my feelings. This is what blogging looks like for... Continue Reading →

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I Know Too Much

Like seriously. Where is my honorary Hematology Nurse degree? Not that I even want it, but I feel like I deserve one for all of the knowledge this brain has soaked up since June 2015. That's almost four years. Not to mention the auto-immune knowledge I had already processed back in 2014 when Lucas had... Continue Reading →

What the Hell is Happening!?

There are so many things going on in my brain, it's complete chaos. At any given moment my brain could just implode. Not explode. Implode, like the Swan Station on LOST. I feel at times that I am losing grip. Mentally, I need a break. I can't get that break. Sure, I do yoga and... Continue Reading →

Bone Marrow, What?

Is This Really Happening? The time has come. The fantasy of my son just squeaking by on his medications, and looking healthy to the untrained eye... Has come to an end. Lucas will be admitted to The Dana Farber / Boston Children's Pediatric Transplant Center on October 16th. That's less than a month away, and... Continue Reading →

When Moms Cry…

Today I just can't get the song "When Doves Cry", out of my head. However, for me today... it's not about the damn doves, it's about me! Supposedly super rockstar mom. Well let me tell you, I cried my eyes out today. I was singing the song to myself in my head as I was trying my... Continue Reading →

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